Thursday, March 6, 2014

Appointments Aplenty

We had a great week of appointments with more to come next week. The biggest one of the week was on Monday for Henry's eye examination. He saw a pediatric opthomologist who specializes in eye diseases and has experience with Asian eyes, so it was a very thorough, informative visit. Henry's eyes are both weak, at 20/40 and 20/100, and he has astigmatisms in each eye. This explains all the headaches, looking sideways a lot, light sensitivity, and blurriness. He also has an eyelash scratching a cornea due to the Asian eye formation, so that will be removed when it becomes more severe. We have picked out some adorable glasses for Henry and he'll be getting fitted tomorrow, then the lenses will be ordered. So, we are very thankful to have some answers now, and very soon, Henry is going to so amazed at what he can see! He'll no doubt soak in even more with better vision. 

Yesterday, Henry had his hearing tested; just as I thought, he has excellent hearing:). He just has some middle ear pressure off, but nothing notable at this time. Today, we had Henry's IEP meeting to review his assessments with the staff and talk about the goals we all have for him in school. We are really impressed with the work that has been done already to get Henry all set up and we are really excited for him. He officially starts in the 3 yr. old's preschool on Tuesday, March 18. Class is Tuesday and Thursday each week from 8:20am to 10:50am. At the end of the year, we will assess whether he is ready for Kindergarten or needs to go on to the 4-5 yr. old's preschool. The class he will be in this year has 12 children, all with a variety of special needs, so Henry should feel right at home and hopefully make some new friends. He is going to receive OT and PT some during classtime each week, and be given lots of opportunity to use his walker. They are preparing handles, steps, chairs, etc. to help him maneuver around as well. And, he'll get to ride in a wagon to/from playground...I think Henry is going to have a great time!

We went swimming over the weekend...it didn't go as well as Henry was tired and not feeling good (though he wouldn't tell me beforehand because he REALLY wanted to go swimming). After about five minutes, he was done and I was frustrated. We cleaned up and watched the brothers swim the rest of the time. We'll give it a go another time...I hope he keeps at it as it is great exercise and good bonding time as he learns to trust me in the water. I can imagine how scary it must be with so little control over what is happening. He is quite brave though, and adorable in his new swimsuit, don't you agree?

Henry also survived his first babysitting as Randy and I went on a date and friends stayed with the boys for the evening. They had a fun time and even though Henry was excited about people coming to play, he sure did cry about me leaving. Joshua cheered him up pretty quick and the rest of the evening went great. His tears are actually a good thing as it shows his attachment...I wonder how his first day of school will go!

Some other highlights of the week include story time at the library where Henry made a cow puppet, Henry's new and improved silly faces, and his new fascination with playing baseball. Remember my post about his role playing? Well, now he is a baseball player!

Next week is a BIG one...perhaps our most important yet in terms of Henry's medical evaluations. On Tuesday, he and I head to Shriner's in Portland where he will be put to sleep and get the MRI for his back and neck. We will stay at their guesthouse that evening, then Henry will see the spinal doctor early Wednesday morning. The information gathered is critical and I hope it gives insight into what can be further done to help him...please pray that it does so!

I will keep you all posted and certainly will post a picture of Henry with his new glasses. Thank you for keeping up with us and for your prayers. Henry continues to do great, his stomach pains have subsided with perhaps a bug he had, and he is so full of life, love, and learning that he truly makes all of us smile and thankful each day. What a gift we have been given...Blessings!

Henry's declaration of love to me:)

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